CIBMTR Reporting Implementation Guide
0.1.4 - Trial Use 1

This page is part of the CIMBTRReporting (v0.1.4: Trial Use 1) based on FHIR R4. This is the current published version. For a full list of available versions, see the Directory of published versions

Resource Profile: CIBMTR Patient Profile (us-core)

Defining URL:http://fhir.nmdp.org/ig/cibmtr-reporting/StructureDefinition/cibmtr-patient
Version:0.1.4
Name:CIBMTRPatient
Title:CIBMTR Patient Profile (us-core)
Status:Active as of 2021-06-25T13:41:27-05:00
Definition:

CIBMTR Patient Profile for CRID assignment (us-core)

Publisher:The Medical College of Wisconsin, Inc. and the National Marrow Donor Program
Source Resource:XML / JSON / Turtle

The official URL for this profile is:

http://fhir.nmdp.org/ig/cibmtr-reporting/StructureDefinition/cibmtr-patient

Intro

This is the introduction to the CIBMTR Patient Profile. This is found at the beginning of the profile.

Formal Views of Profile Content

Description of Profiles, Differentials, Snapshots and how the different presentations work.

This structure is derived from USCorePatientProfile

Summary

Mandatory: 0 element (4 nested mandatory elements)
Must-Support: 8 elements

Extensions

This structure refers to these extensions:

Slices

This structure defines the following Slices:

  • The element Patient.meta.security is sliced based on the value of pattern:system
  • The element Patient.identifier is sliced based on the value of pattern:system

This structure is derived from USCorePatientProfile

NameFlagsCard.TypeDescription & Constraintsdoco
.. Patient 0..*USCorePatientProfileInformation about an individual or animal receiving health care services
... meta
.... security 1..*(Slice Definition)Security Labels applied to this resource
Slice: Unordered, Open by pattern:system
..... security:TransplantCenter S1..1CodingSecurity Labels applied to this resource
...... system 1..1uriIdentity of the terminology system
Required Pattern: http://terminology.cibmtr.org/codesystem/transplant-center
...... code I1..1codeSymbol in syntax defined by the system
sec-rc: Use transplant center identifier for security tag
... patient-mothersMaidenName S0..1stringMother's Maiden name
URL: http://hl7.org/fhir/StructureDefinition/patient-mothersMaidenName
... us-core-birthsex S0..1codeExtension
URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-birthsex
Binding: Birth Sex (required): Code for sex assigned at birth

... identifier 1..*(Slice Definition)An identifier for this patient
Slice: Unordered, Open by pattern:system
.... identifier:CRID S0..1IdentifierAn identifier for this patient
..... system 1..1uriThe namespace for the identifier value
Required Pattern: http://terminology.cibmtr.org/identifier/CRID
.... identifier:GRID S0..1IdentifierAn identifier for this patient
..... type
...... coding
....... system 0..1uriIdentity of the terminology system
Required Pattern: https://www.hl7.org/fhir/v2/0203/index.html
....... code 0..1codeSymbol in syntax defined by the system
Required Pattern: DR
..... system 1..1uriThe namespace for the identifier value
Required Pattern: http://www.isbt128.org/uri/GRID
.... identifier:NMDPRecipient S0..1IdentifierAn identifier for this patient
..... system 1..1uriThe namespace for the identifier value
Required Pattern: http://terminology.nmdp.org/identifier/recipient
.... identifier:CIBMTR-non-NMDP-donor 0..1IdentifierAn identifier for this patient
..... system 1..1uriThe namespace for the identifier value
Required Pattern: http://terminology.cibmtr.org/identifier/non-nmdp-donor
.... identifier:SSN S0..1IdentifierAn identifier for this patient
..... system 1..1uriThe namespace for the identifier value
Required Pattern: http://hl7.org/fhir/sid/us-ssn

doco Documentation for this format
NameFlagsCard.TypeDescription & Constraintsdoco
.. Patient 0..*USCorePatientProfileInformation about an individual or animal receiving health care services
... id Σ0..1stringLogical id of this artifact
... meta Σ0..1MetaMetadata about the resource
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
.... versionId Σ0..1idVersion specific identifier
.... lastUpdated Σ0..1instantWhen the resource version last changed
.... source Σ0..1uriIdentifies where the resource comes from
.... profile Σ0..*canonical(StructureDefinition)Profiles this resource claims to conform to
.... security Σ1..*(Slice Definition)Security Labels applied to this resource
Slice: Unordered, Open by pattern:system
Binding: All Security Labels (extensible): Security Labels from the Healthcare Privacy and Security Classification System.


..... security:TransplantCenter SΣ1..1CodingSecurity Labels applied to this resource
Binding: All Security Labels (extensible): Security Labels from the Healthcare Privacy and Security Classification System.


...... id 0..1stringUnique id for inter-element referencing
...... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
...... system Σ1..1uriIdentity of the terminology system
Required Pattern: http://terminology.cibmtr.org/codesystem/transplant-center
...... version Σ0..1stringVersion of the system - if relevant
...... code ΣI1..1codeSymbol in syntax defined by the system
sec-rc: Use transplant center identifier for security tag
...... display Σ0..1stringRepresentation defined by the system
...... userSelected Σ0..1booleanIf this coding was chosen directly by the user
.... tag Σ0..*CodingTags applied to this resource
Binding: CommonTags (example): Codes that represent various types of tags, commonly workflow-related; e.g. "Needs review by Dr. Jones".


... implicitRules ?!Σ0..1uriA set of rules under which this content was created
... language 0..1codeLanguage of the resource content
Binding: CommonLanguages (preferred)
Max Binding: AllLanguages: A human language.

... text 0..1NarrativeText summary of the resource, for human interpretation
... contained 0..*ResourceContained, inline Resources
... extension 0..*ExtensionExtension
Slice: Unordered, Open by value:url
... us-core-race S0..1(Complex)US Core Race Extension
URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-race
... us-core-ethnicity S0..1(Complex)US Core ethnicity Extension
URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-ethnicity
... us-core-birthsex S0..1codeExtension
URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-birthsex
Binding: Birth Sex (required): Code for sex assigned at birth


... patient-mothersMaidenName S0..1stringMother's Maiden name
URL: http://hl7.org/fhir/StructureDefinition/patient-mothersMaidenName
... us-core-birthsex S0..1codeExtension
URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-birthsex
Binding: Birth Sex (required): Code for sex assigned at birth


... patient-birthPlace S0..1AddressPlace of Birth for patient
URL: http://hl7.org/fhir/StructureDefinition/patient-birthPlace
... modifierExtension ?!0..*ExtensionExtensions that cannot be ignored
... identifier SΣ1..*(Slice Definition)An identifier for this patient
Slice: Unordered, Open by pattern:system
.... identifier:All Slices Content/Rules for all slices
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
..... use ?!Σ0..1codeusual | official | temp | secondary | old (If known)
Binding: IdentifierUse (required): Identifies the purpose for this identifier, if known .

..... type Σ0..1CodeableConceptDescription of identifier
Binding: Identifier Type Codes (extensible): A coded type for an identifier that can be used to determine which identifier to use for a specific purpose.

..... system SΣ1..1uriThe namespace for the identifier value
Example General: http://www.acme.com/identifiers/patient
..... value SΣ1..1stringThe value that is unique within the system.
Example General: 123456
..... period Σ0..1PeriodTime period when id is/was valid for use
..... assigner Σ0..1Reference(Organization)Organization that issued id (may be just text)
.... identifier:CRID SΣ0..1IdentifierAn identifier for this patient
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
..... use ?!Σ0..1codeusual | official | temp | secondary | old (If known)
Binding: IdentifierUse (required): Identifies the purpose for this identifier, if known .

..... type Σ0..1CodeableConceptDescription of identifier
Binding: Identifier Type Codes (extensible): A coded type for an identifier that can be used to determine which identifier to use for a specific purpose.

..... system SΣ1..1uriThe namespace for the identifier value
Required Pattern: http://terminology.cibmtr.org/identifier/CRID
..... value SΣ1..1stringThe value that is unique within the system.
Example General: 123456
..... period Σ0..1PeriodTime period when id is/was valid for use
..... assigner Σ0..1Reference(Organization)Organization that issued id (may be just text)
.... identifier:GRID SΣ0..1IdentifierAn identifier for this patient
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
..... use ?!Σ0..1codeusual | official | temp | secondary | old (If known)
Binding: IdentifierUse (required): Identifies the purpose for this identifier, if known .

..... type Σ0..1CodeableConceptDescription of identifier
Binding: Identifier Type Codes (extensible): A coded type for an identifier that can be used to determine which identifier to use for a specific purpose.

...... id 0..1stringUnique id for inter-element referencing
...... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
...... coding Σ0..*CodingCode defined by a terminology system
....... id 0..1stringUnique id for inter-element referencing
....... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
....... system Σ0..1uriIdentity of the terminology system
Required Pattern: https://www.hl7.org/fhir/v2/0203/index.html
....... version Σ0..1stringVersion of the system - if relevant
....... code Σ0..1codeSymbol in syntax defined by the system
Required Pattern: DR
....... display Σ0..1stringRepresentation defined by the system
....... userSelected Σ0..1booleanIf this coding was chosen directly by the user
...... text Σ0..1stringPlain text representation of the concept
..... system SΣ1..1uriThe namespace for the identifier value
Required Pattern: http://www.isbt128.org/uri/GRID
..... value SΣ1..1stringThe value that is unique within the system.
Example General: 123456
..... period Σ0..1PeriodTime period when id is/was valid for use
..... assigner Σ0..1Reference(Organization)Organization that issued id (may be just text)
.... identifier:NMDPRecipient SΣ0..1IdentifierAn identifier for this patient
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
..... use ?!Σ0..1codeusual | official | temp | secondary | old (If known)
Binding: IdentifierUse (required): Identifies the purpose for this identifier, if known .

..... type Σ0..1CodeableConceptDescription of identifier
Binding: Identifier Type Codes (extensible): A coded type for an identifier that can be used to determine which identifier to use for a specific purpose.

..... system SΣ1..1uriThe namespace for the identifier value
Required Pattern: http://terminology.nmdp.org/identifier/recipient
..... value SΣ1..1stringThe value that is unique within the system.
Example General: 123456
..... period Σ0..1PeriodTime period when id is/was valid for use
..... assigner Σ0..1Reference(Organization)Organization that issued id (may be just text)
.... identifier:CIBMTR-non-NMDP-donor SΣ0..1IdentifierAn identifier for this patient
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
..... use ?!Σ0..1codeusual | official | temp | secondary | old (If known)
Binding: IdentifierUse (required): Identifies the purpose for this identifier, if known .

..... type Σ0..1CodeableConceptDescription of identifier
Binding: Identifier Type Codes (extensible): A coded type for an identifier that can be used to determine which identifier to use for a specific purpose.

..... system SΣ1..1uriThe namespace for the identifier value
Required Pattern: http://terminology.cibmtr.org/identifier/non-nmdp-donor
..... value SΣ1..1stringThe value that is unique within the system.
Example General: 123456
..... period Σ0..1PeriodTime period when id is/was valid for use
..... assigner Σ0..1Reference(Organization)Organization that issued id (may be just text)
.... identifier:SSN SΣ0..1IdentifierAn identifier for this patient
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
..... use ?!Σ0..1codeusual | official | temp | secondary | old (If known)
Binding: IdentifierUse (required): Identifies the purpose for this identifier, if known .

..... type Σ0..1CodeableConceptDescription of identifier
Binding: Identifier Type Codes (extensible): A coded type for an identifier that can be used to determine which identifier to use for a specific purpose.

..... system SΣ1..1uriThe namespace for the identifier value
Required Pattern: http://hl7.org/fhir/sid/us-ssn
..... value SΣ1..1stringThe value that is unique within the system.
Example General: 123456
..... period Σ0..1PeriodTime period when id is/was valid for use
..... assigner Σ0..1Reference(Organization)Organization that issued id (may be just text)
... active ?!Σ0..1booleanWhether this patient's record is in active use
... name SΣI1..*HumanNameA name associated with the patient
us-core-8: Either Patient.name.given and/or Patient.name.family SHALL be present or a Data Absent Reason Extension SHALL be present.
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
.... use ?!Σ0..1codeusual | official | temp | nickname | anonymous | old | maiden
Binding: NameUse (required): The use of a human name.

.... text Σ0..1stringText representation of the full name
.... family SΣI0..1stringFamily name (often called 'Surname')
.... given SΣI0..*stringGiven names (not always 'first'). Includes middle names
This repeating element order: Given Names appear in the correct order for presenting the name
.... prefix Σ0..*stringParts that come before the name
This repeating element order: Prefixes appear in the correct order for presenting the name
.... suffix Σ0..*stringParts that come after the name
This repeating element order: Suffixes appear in the correct order for presenting the name
.... period Σ0..1PeriodTime period when name was/is in use
... telecom SΣ0..*ContactPointA contact detail for the individual
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
.... system SΣI1..1codephone | fax | email | pager | url | sms | other
Binding: ContactPointSystem (required): Telecommunications form for contact point.

.... value SΣ1..1stringThe actual contact point details
.... use ?!SΣ0..1codehome | work | temp | old | mobile - purpose of this contact point
Binding: ContactPointUse (required)
.... rank Σ0..1positiveIntSpecify preferred order of use (1 = highest)
.... period Σ0..1PeriodTime period when the contact point was/is in use
... gender SΣ1..1codemale | female | other | unknown
Binding: AdministrativeGender (required)
... birthDate SΣ0..1dateThe date of birth for the individual
... deceased[x] ?!Σ0..1Indicates if the individual is deceased or not
.... deceasedBooleanboolean
.... deceasedDateTimedateTime
... address SΣ0..*AddressAn address for the individual
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
.... use ?!Σ0..1codehome | work | temp | old | billing - purpose of this address
Binding: AddressUse (required): The use of an address.


Example General: home
.... type Σ0..1codepostal | physical | both
Binding: AddressType (required): The type of an address (physical / postal).


Example General: both
.... text Σ0..1stringText representation of the address
Example General: 137 Nowhere Street, Erewhon 9132
.... line SΣ0..*stringStreet name, number, direction & P.O. Box etc.
This repeating element order: The order in which lines should appear in an address label
Example General: 137 Nowhere Street
.... city SΣ0..1stringName of city, town etc.
Example General: Erewhon
.... district Σ0..1stringDistrict name (aka county)
Example General: Madison
.... state SΣ0..1stringSub-unit of country (abbreviations ok)
Binding: USPS Two Letter Alphabetic Codes (extensible): Two Letter USPS alphabetic codes.

.... postalCode SΣ0..1stringUS Zip Codes
Example General: 9132
.... country Σ0..1stringCountry (e.g. can be ISO 3166 2 or 3 letter code)
.... period SΣ0..1PeriodTime period when address was/is in use
Example General: {"start":"2010-03-23","end":"2010-07-01"}
... maritalStatus 0..1CodeableConceptMarital (civil) status of a patient
Binding: Marital Status Codes (extensible): The domestic partnership status of a person.

... multipleBirth[x] 0..1Whether patient is part of a multiple birth
.... multipleBirthBooleanboolean
.... multipleBirthIntegerinteger
... photo 0..*AttachmentImage of the patient
... contact I0..*BackboneElementA contact party (e.g. guardian, partner, friend) for the patient
pat-1: SHALL at least contain a contact's details or a reference to an organization
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
.... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
.... relationship 0..*CodeableConceptThe kind of relationship
Binding: PatientContactRelationship (extensible): The nature of the relationship between a patient and a contact person for that patient.


.... name 0..1HumanNameA name associated with the contact person
.... telecom 0..*ContactPointA contact detail for the person
.... address 0..1AddressAddress for the contact person
.... gender 0..1codemale | female | other | unknown
Binding: AdministrativeGender (required): The gender of a person used for administrative purposes.

.... organization I0..1Reference(Organization)Organization that is associated with the contact
.... period 0..1PeriodThe period during which this contact person or organization is valid to be contacted relating to this patient
... communication S0..*BackboneElementA language which may be used to communicate with the patient about his or her health
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
.... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
.... language S1..1CodeableConceptThe language which can be used to communicate with the patient about his or her health
Binding: Language codes with language and optionally a region modifier (extensible)
.... preferred 0..1booleanLanguage preference indicator
... generalPractitioner 0..*Reference(Organization | Practitioner | PractitionerRole)Patient's nominated primary care provider
... managingOrganization Σ0..1Reference(Organization)Organization that is the custodian of the patient record
... link ?!Σ0..*BackboneElementLink to another patient resource that concerns the same actual person
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
.... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
.... other Σ1..1Reference(Patient | RelatedPerson)The other patient or related person resource that the link refers to
.... type Σ1..1codereplaced-by | replaces | refer | seealso
Binding: LinkType (required): The type of link between this patient resource and another patient resource.


doco Documentation for this format
NameFlagsCard.TypeDescription & Constraintsdoco
.. Patient 0..*USCorePatientProfileInformation about an individual or animal receiving health care services
... meta Σ0..1MetaMetadata about the resource
.... security:TransplantCenter Σ1..1CodingSecurity Labels applied to this resource
Binding: All Security Labels (extensible): Security Labels from the Healthcare Privacy and Security Classification System.


... us-core-race 0..1(Complex)US Core Race Extension
URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-race
... us-core-ethnicity 0..1(Complex)US Core ethnicity Extension
URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-ethnicity
... patient-mothersMaidenName 0..1stringMother's Maiden name
URL: http://hl7.org/fhir/StructureDefinition/patient-mothersMaidenName
... us-core-birthsex 0..1codeExtension
URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-birthsex
Binding: Birth Sex (required): Code for sex assigned at birth


... patient-birthPlace 0..1AddressPlace of Birth for patient
URL: http://hl7.org/fhir/StructureDefinition/patient-birthPlace
... identifier Σ1..*(Slice Definition)An identifier for this patient
Slice: Unordered, Open by pattern:system
.... identifier:All Slices Content/Rules for all slices
..... system Σ1..1uriThe namespace for the identifier value
..... value Σ1..1stringThe value that is unique within the system.
.... identifier:CRID Σ0..1IdentifierAn identifier for this patient
..... system Σ1..1uriThe namespace for the identifier value
Required Pattern: http://terminology.cibmtr.org/identifier/CRID
..... value Σ1..1stringThe value that is unique within the system.
.... identifier:GRID Σ0..1IdentifierAn identifier for this patient
..... system Σ1..1uriThe namespace for the identifier value
Required Pattern: http://www.isbt128.org/uri/GRID
..... value Σ1..1stringThe value that is unique within the system.
.... identifier:NMDPRecipient Σ0..1IdentifierAn identifier for this patient
..... system Σ1..1uriThe namespace for the identifier value
Required Pattern: http://terminology.nmdp.org/identifier/recipient
..... value Σ1..1stringThe value that is unique within the system.
.... identifier:CIBMTR-non-NMDP-donor Σ0..1IdentifierAn identifier for this patient
..... system Σ1..1uriThe namespace for the identifier value
Required Pattern: http://terminology.cibmtr.org/identifier/non-nmdp-donor
..... value Σ1..1stringThe value that is unique within the system.
.... identifier:SSN Σ0..1IdentifierAn identifier for this patient
..... system Σ1..1uriThe namespace for the identifier value
Required Pattern: http://hl7.org/fhir/sid/us-ssn
..... value Σ1..1stringThe value that is unique within the system.
... name ΣI1..*HumanNameA name associated with the patient
us-core-8: Either Patient.name.given and/or Patient.name.family SHALL be present or a Data Absent Reason Extension SHALL be present.
.... family ΣI0..1stringFamily name (often called 'Surname')
.... given ΣI0..*stringGiven names (not always 'first'). Includes middle names
This repeating element order: Given Names appear in the correct order for presenting the name
... telecom Σ0..*ContactPointA contact detail for the individual
.... system ΣI1..1codephone | fax | email | pager | url | sms | other
Binding: ContactPointSystem (required): Telecommunications form for contact point.

.... value Σ1..1stringThe actual contact point details
.... use ?!Σ0..1codehome | work | temp | old | mobile - purpose of this contact point
Binding: ContactPointUse (required)
... gender Σ1..1codemale | female | other | unknown
Binding: AdministrativeGender (required)
... birthDate Σ0..1dateThe date of birth for the individual
... address Σ0..*AddressAn address for the individual
.... line Σ0..*stringStreet name, number, direction & P.O. Box etc.
This repeating element order: The order in which lines should appear in an address label
.... city Σ0..1stringName of city, town etc.
.... state Σ0..1stringSub-unit of country (abbreviations ok)
Binding: USPS Two Letter Alphabetic Codes (extensible): Two Letter USPS alphabetic codes.

.... postalCode Σ0..1stringUS Zip Codes
.... period Σ0..1PeriodTime period when address was/is in use
... communication 0..*BackboneElementA language which may be used to communicate with the patient about his or her health
.... language 1..1CodeableConceptThe language which can be used to communicate with the patient about his or her health
Binding: Language codes with language and optionally a region modifier (extensible)

doco Documentation for this format

This structure is derived from USCorePatientProfile

Summary

Mandatory: 0 element (4 nested mandatory elements)
Must-Support: 8 elements

Extensions

This structure refers to these extensions:

Slices

This structure defines the following Slices:

  • The element Patient.meta.security is sliced based on the value of pattern:system
  • The element Patient.identifier is sliced based on the value of pattern:system

Differential View

This structure is derived from USCorePatientProfile

NameFlagsCard.TypeDescription & Constraintsdoco
.. Patient 0..*USCorePatientProfileInformation about an individual or animal receiving health care services
... meta
.... security 1..*(Slice Definition)Security Labels applied to this resource
Slice: Unordered, Open by pattern:system
..... security:TransplantCenter S1..1CodingSecurity Labels applied to this resource
...... system 1..1uriIdentity of the terminology system
Required Pattern: http://terminology.cibmtr.org/codesystem/transplant-center
...... code I1..1codeSymbol in syntax defined by the system
sec-rc: Use transplant center identifier for security tag
... patient-mothersMaidenName S0..1stringMother's Maiden name
URL: http://hl7.org/fhir/StructureDefinition/patient-mothersMaidenName
... us-core-birthsex S0..1codeExtension
URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-birthsex
Binding: Birth Sex (required): Code for sex assigned at birth

... identifier 1..*(Slice Definition)An identifier for this patient
Slice: Unordered, Open by pattern:system
.... identifier:CRID S0..1IdentifierAn identifier for this patient
..... system 1..1uriThe namespace for the identifier value
Required Pattern: http://terminology.cibmtr.org/identifier/CRID
.... identifier:GRID S0..1IdentifierAn identifier for this patient
..... type
...... coding
....... system 0..1uriIdentity of the terminology system
Required Pattern: https://www.hl7.org/fhir/v2/0203/index.html
....... code 0..1codeSymbol in syntax defined by the system
Required Pattern: DR
..... system 1..1uriThe namespace for the identifier value
Required Pattern: http://www.isbt128.org/uri/GRID
.... identifier:NMDPRecipient S0..1IdentifierAn identifier for this patient
..... system 1..1uriThe namespace for the identifier value
Required Pattern: http://terminology.nmdp.org/identifier/recipient
.... identifier:CIBMTR-non-NMDP-donor 0..1IdentifierAn identifier for this patient
..... system 1..1uriThe namespace for the identifier value
Required Pattern: http://terminology.cibmtr.org/identifier/non-nmdp-donor
.... identifier:SSN S0..1IdentifierAn identifier for this patient
..... system 1..1uriThe namespace for the identifier value
Required Pattern: http://hl7.org/fhir/sid/us-ssn

doco Documentation for this format

Snapshot View

NameFlagsCard.TypeDescription & Constraintsdoco
.. Patient 0..*USCorePatientProfileInformation about an individual or animal receiving health care services
... id Σ0..1stringLogical id of this artifact
... meta Σ0..1MetaMetadata about the resource
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
.... versionId Σ0..1idVersion specific identifier
.... lastUpdated Σ0..1instantWhen the resource version last changed
.... source Σ0..1uriIdentifies where the resource comes from
.... profile Σ0..*canonical(StructureDefinition)Profiles this resource claims to conform to
.... security Σ1..*(Slice Definition)Security Labels applied to this resource
Slice: Unordered, Open by pattern:system
Binding: All Security Labels (extensible): Security Labels from the Healthcare Privacy and Security Classification System.


..... security:TransplantCenter SΣ1..1CodingSecurity Labels applied to this resource
Binding: All Security Labels (extensible): Security Labels from the Healthcare Privacy and Security Classification System.


...... id 0..1stringUnique id for inter-element referencing
...... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
...... system Σ1..1uriIdentity of the terminology system
Required Pattern: http://terminology.cibmtr.org/codesystem/transplant-center
...... version Σ0..1stringVersion of the system - if relevant
...... code ΣI1..1codeSymbol in syntax defined by the system
sec-rc: Use transplant center identifier for security tag
...... display Σ0..1stringRepresentation defined by the system
...... userSelected Σ0..1booleanIf this coding was chosen directly by the user
.... tag Σ0..*CodingTags applied to this resource
Binding: CommonTags (example): Codes that represent various types of tags, commonly workflow-related; e.g. "Needs review by Dr. Jones".


... implicitRules ?!Σ0..1uriA set of rules under which this content was created
... language 0..1codeLanguage of the resource content
Binding: CommonLanguages (preferred)
Max Binding: AllLanguages: A human language.

... text 0..1NarrativeText summary of the resource, for human interpretation
... contained 0..*ResourceContained, inline Resources
... extension 0..*ExtensionExtension
Slice: Unordered, Open by value:url
... us-core-race S0..1(Complex)US Core Race Extension
URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-race
... us-core-ethnicity S0..1(Complex)US Core ethnicity Extension
URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-ethnicity
... us-core-birthsex S0..1codeExtension
URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-birthsex
Binding: Birth Sex (required): Code for sex assigned at birth


... patient-mothersMaidenName S0..1stringMother's Maiden name
URL: http://hl7.org/fhir/StructureDefinition/patient-mothersMaidenName
... us-core-birthsex S0..1codeExtension
URL: http://hl7.org/fhir/us/core/StructureDefinition/us-core-birthsex
Binding: Birth Sex (required): Code for sex assigned at birth


... patient-birthPlace S0..1AddressPlace of Birth for patient
URL: http://hl7.org/fhir/StructureDefinition/patient-birthPlace
... modifierExtension ?!0..*ExtensionExtensions that cannot be ignored
... identifier SΣ1..*(Slice Definition)An identifier for this patient
Slice: Unordered, Open by pattern:system
.... identifier:All Slices Content/Rules for all slices
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
..... use ?!Σ0..1codeusual | official | temp | secondary | old (If known)
Binding: IdentifierUse (required): Identifies the purpose for this identifier, if known .

..... type Σ0..1CodeableConceptDescription of identifier
Binding: Identifier Type Codes (extensible): A coded type for an identifier that can be used to determine which identifier to use for a specific purpose.

..... system SΣ1..1uriThe namespace for the identifier value
Example General: http://www.acme.com/identifiers/patient
..... value SΣ1..1stringThe value that is unique within the system.
Example General: 123456
..... period Σ0..1PeriodTime period when id is/was valid for use
..... assigner Σ0..1Reference(Organization)Organization that issued id (may be just text)
.... identifier:CRID SΣ0..1IdentifierAn identifier for this patient
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
..... use ?!Σ0..1codeusual | official | temp | secondary | old (If known)
Binding: IdentifierUse (required): Identifies the purpose for this identifier, if known .

..... type Σ0..1CodeableConceptDescription of identifier
Binding: Identifier Type Codes (extensible): A coded type for an identifier that can be used to determine which identifier to use for a specific purpose.

..... system SΣ1..1uriThe namespace for the identifier value
Required Pattern: http://terminology.cibmtr.org/identifier/CRID
..... value SΣ1..1stringThe value that is unique within the system.
Example General: 123456
..... period Σ0..1PeriodTime period when id is/was valid for use
..... assigner Σ0..1Reference(Organization)Organization that issued id (may be just text)
.... identifier:GRID SΣ0..1IdentifierAn identifier for this patient
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
..... use ?!Σ0..1codeusual | official | temp | secondary | old (If known)
Binding: IdentifierUse (required): Identifies the purpose for this identifier, if known .

..... type Σ0..1CodeableConceptDescription of identifier
Binding: Identifier Type Codes (extensible): A coded type for an identifier that can be used to determine which identifier to use for a specific purpose.

...... id 0..1stringUnique id for inter-element referencing
...... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
...... coding Σ0..*CodingCode defined by a terminology system
....... id 0..1stringUnique id for inter-element referencing
....... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
....... system Σ0..1uriIdentity of the terminology system
Required Pattern: https://www.hl7.org/fhir/v2/0203/index.html
....... version Σ0..1stringVersion of the system - if relevant
....... code Σ0..1codeSymbol in syntax defined by the system
Required Pattern: DR
....... display Σ0..1stringRepresentation defined by the system
....... userSelected Σ0..1booleanIf this coding was chosen directly by the user
...... text Σ0..1stringPlain text representation of the concept
..... system SΣ1..1uriThe namespace for the identifier value
Required Pattern: http://www.isbt128.org/uri/GRID
..... value SΣ1..1stringThe value that is unique within the system.
Example General: 123456
..... period Σ0..1PeriodTime period when id is/was valid for use
..... assigner Σ0..1Reference(Organization)Organization that issued id (may be just text)
.... identifier:NMDPRecipient SΣ0..1IdentifierAn identifier for this patient
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
..... use ?!Σ0..1codeusual | official | temp | secondary | old (If known)
Binding: IdentifierUse (required): Identifies the purpose for this identifier, if known .

..... type Σ0..1CodeableConceptDescription of identifier
Binding: Identifier Type Codes (extensible): A coded type for an identifier that can be used to determine which identifier to use for a specific purpose.

..... system SΣ1..1uriThe namespace for the identifier value
Required Pattern: http://terminology.nmdp.org/identifier/recipient
..... value SΣ1..1stringThe value that is unique within the system.
Example General: 123456
..... period Σ0..1PeriodTime period when id is/was valid for use
..... assigner Σ0..1Reference(Organization)Organization that issued id (may be just text)
.... identifier:CIBMTR-non-NMDP-donor SΣ0..1IdentifierAn identifier for this patient
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
..... use ?!Σ0..1codeusual | official | temp | secondary | old (If known)
Binding: IdentifierUse (required): Identifies the purpose for this identifier, if known .

..... type Σ0..1CodeableConceptDescription of identifier
Binding: Identifier Type Codes (extensible): A coded type for an identifier that can be used to determine which identifier to use for a specific purpose.

..... system SΣ1..1uriThe namespace for the identifier value
Required Pattern: http://terminology.cibmtr.org/identifier/non-nmdp-donor
..... value SΣ1..1stringThe value that is unique within the system.
Example General: 123456
..... period Σ0..1PeriodTime period when id is/was valid for use
..... assigner Σ0..1Reference(Organization)Organization that issued id (may be just text)
.... identifier:SSN SΣ0..1IdentifierAn identifier for this patient
..... id 0..1stringUnique id for inter-element referencing
..... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
..... use ?!Σ0..1codeusual | official | temp | secondary | old (If known)
Binding: IdentifierUse (required): Identifies the purpose for this identifier, if known .

..... type Σ0..1CodeableConceptDescription of identifier
Binding: Identifier Type Codes (extensible): A coded type for an identifier that can be used to determine which identifier to use for a specific purpose.

..... system SΣ1..1uriThe namespace for the identifier value
Required Pattern: http://hl7.org/fhir/sid/us-ssn
..... value SΣ1..1stringThe value that is unique within the system.
Example General: 123456
..... period Σ0..1PeriodTime period when id is/was valid for use
..... assigner Σ0..1Reference(Organization)Organization that issued id (may be just text)
... active ?!Σ0..1booleanWhether this patient's record is in active use
... name SΣI1..*HumanNameA name associated with the patient
us-core-8: Either Patient.name.given and/or Patient.name.family SHALL be present or a Data Absent Reason Extension SHALL be present.
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
.... use ?!Σ0..1codeusual | official | temp | nickname | anonymous | old | maiden
Binding: NameUse (required): The use of a human name.

.... text Σ0..1stringText representation of the full name
.... family SΣI0..1stringFamily name (often called 'Surname')
.... given SΣI0..*stringGiven names (not always 'first'). Includes middle names
This repeating element order: Given Names appear in the correct order for presenting the name
.... prefix Σ0..*stringParts that come before the name
This repeating element order: Prefixes appear in the correct order for presenting the name
.... suffix Σ0..*stringParts that come after the name
This repeating element order: Suffixes appear in the correct order for presenting the name
.... period Σ0..1PeriodTime period when name was/is in use
... telecom SΣ0..*ContactPointA contact detail for the individual
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
.... system SΣI1..1codephone | fax | email | pager | url | sms | other
Binding: ContactPointSystem (required): Telecommunications form for contact point.

.... value SΣ1..1stringThe actual contact point details
.... use ?!SΣ0..1codehome | work | temp | old | mobile - purpose of this contact point
Binding: ContactPointUse (required)
.... rank Σ0..1positiveIntSpecify preferred order of use (1 = highest)
.... period Σ0..1PeriodTime period when the contact point was/is in use
... gender SΣ1..1codemale | female | other | unknown
Binding: AdministrativeGender (required)
... birthDate SΣ0..1dateThe date of birth for the individual
... deceased[x] ?!Σ0..1Indicates if the individual is deceased or not
.... deceasedBooleanboolean
.... deceasedDateTimedateTime
... address SΣ0..*AddressAn address for the individual
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
Slice: Unordered, Open by value:url
.... use ?!Σ0..1codehome | work | temp | old | billing - purpose of this address
Binding: AddressUse (required): The use of an address.


Example General: home
.... type Σ0..1codepostal | physical | both
Binding: AddressType (required): The type of an address (physical / postal).


Example General: both
.... text Σ0..1stringText representation of the address
Example General: 137 Nowhere Street, Erewhon 9132
.... line SΣ0..*stringStreet name, number, direction & P.O. Box etc.
This repeating element order: The order in which lines should appear in an address label
Example General: 137 Nowhere Street
.... city SΣ0..1stringName of city, town etc.
Example General: Erewhon
.... district Σ0..1stringDistrict name (aka county)
Example General: Madison
.... state SΣ0..1stringSub-unit of country (abbreviations ok)
Binding: USPS Two Letter Alphabetic Codes (extensible): Two Letter USPS alphabetic codes.

.... postalCode SΣ0..1stringUS Zip Codes
Example General: 9132
.... country Σ0..1stringCountry (e.g. can be ISO 3166 2 or 3 letter code)
.... period SΣ0..1PeriodTime period when address was/is in use
Example General: {"start":"2010-03-23","end":"2010-07-01"}
... maritalStatus 0..1CodeableConceptMarital (civil) status of a patient
Binding: Marital Status Codes (extensible): The domestic partnership status of a person.

... multipleBirth[x] 0..1Whether patient is part of a multiple birth
.... multipleBirthBooleanboolean
.... multipleBirthIntegerinteger
... photo 0..*AttachmentImage of the patient
... contact I0..*BackboneElementA contact party (e.g. guardian, partner, friend) for the patient
pat-1: SHALL at least contain a contact's details or a reference to an organization
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
.... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
.... relationship 0..*CodeableConceptThe kind of relationship
Binding: PatientContactRelationship (extensible): The nature of the relationship between a patient and a contact person for that patient.


.... name 0..1HumanNameA name associated with the contact person
.... telecom 0..*ContactPointA contact detail for the person
.... address 0..1AddressAddress for the contact person
.... gender 0..1codemale | female | other | unknown
Binding: AdministrativeGender (required): The gender of a person used for administrative purposes.

.... organization I0..1Reference(Organization)Organization that is associated with the contact
.... period 0..1PeriodThe period during which this contact person or organization is valid to be contacted relating to this patient
... communication S0..*BackboneElementA language which may be used to communicate with the patient about his or her health
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
.... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
.... language S1..1CodeableConceptThe language which can be used to communicate with the patient about his or her health
Binding: Language codes with language and optionally a region modifier (extensible)
.... preferred 0..1booleanLanguage preference indicator
... generalPractitioner 0..*Reference(Organization | Practitioner | PractitionerRole)Patient's nominated primary care provider
... managingOrganization Σ0..1Reference(Organization)Organization that is the custodian of the patient record
... link ?!Σ0..*BackboneElementLink to another patient resource that concerns the same actual person
.... id 0..1stringUnique id for inter-element referencing
.... extension 0..*ExtensionAdditional content defined by implementations
.... modifierExtension ?!Σ0..*ExtensionExtensions that cannot be ignored even if unrecognized
.... other Σ1..1Reference(Patient | RelatedPerson)The other patient or related person resource that the link refers to
.... type Σ1..1codereplaced-by | replaces | refer | seealso
Binding: LinkType (required): The type of link between this patient resource and another patient resource.


doco Documentation for this format

 

Other representations of profile: CSV, Excel, Schematron

Terminology Bindings

PathConformanceValueSet
Patient.meta.securityextensibleAll Security Labels
Patient.meta.security:TransplantCenterextensibleAll Security Labels
Patient.meta.tagexampleCommonTags
Patient.languagepreferredCommonLanguages
Max Binding: AllLanguages
Patient.identifier.userequiredIdentifierUse
Patient.identifier.typeextensibleIdentifier Type Codes
Patient.identifier:CRID.userequiredIdentifierUse
Patient.identifier:CRID.typeextensibleIdentifier Type Codes
Patient.identifier:GRID.userequiredIdentifierUse
Patient.identifier:GRID.typeextensibleIdentifier Type Codes
Patient.identifier:NMDPRecipient.userequiredIdentifierUse
Patient.identifier:NMDPRecipient.typeextensibleIdentifier Type Codes
Patient.identifier:CIBMTR-non-NMDP-donor.userequiredIdentifierUse
Patient.identifier:CIBMTR-non-NMDP-donor.typeextensibleIdentifier Type Codes
Patient.identifier:SSN.userequiredIdentifierUse
Patient.identifier:SSN.typeextensibleIdentifier Type Codes
Patient.name.userequiredNameUse
Patient.telecom.systemrequiredContactPointSystem
Patient.telecom.userequiredContactPointUse
Patient.genderrequiredAdministrativeGender
Patient.address.userequiredAddressUse
Patient.address.typerequiredAddressType
Patient.address.stateextensibleUspsTwoLetterAlphabeticCodes
Patient.maritalStatusextensibleMarital Status Codes
Patient.contact.relationshipextensiblePatientContactRelationship
Patient.contact.genderrequiredAdministrativeGender
Patient.communication.languageextensibleLanguageCodesWithLanguageAndOptionallyARegionModifier
Patient.link.typerequiredLinkType

Constraints

IdPathDetailsRequirements
sec-rcPatient.meta.security:TransplantCenter.codeUse transplant center identifier for security tag
: matches('^rc_[0-9]{5}$')
us-core-8Patient.nameEither Patient.name.given and/or Patient.name.family SHALL be present or a Data Absent Reason Extension SHALL be present.
: (family.exists() or given.exists()) xor extension.where(url='http://hl7.org/fhir/StructureDefinition/data-absent-reason').exists()
pat-1Patient.contactSHALL at least contain a contact's details or a reference to an organization
: name.exists() or telecom.exists() or address.exists() or organization.exists()

Notes:

Notes

Here are some notes for CIBMTR Patient Profile. This is found at the end of the profile.